Parent To Parent Support Group

QUEENS SICKLE CELL ADVOCACY NETWORK, INC.

Information & Referral Center Servicing Children and Families with Special Needs

Queens Sickle Cell Advocacy Network, Inc.

205-14 Linden Blvd. Suite 206

St. Albans, New York 11412

PHONE:718-712-0873 FAX: 712-0198

EMAIL: qscanorg@verizon.net

Parent to Parent

Support Group

Our parent to parent support group meets the first Monday of every month

from 7:00 PM to 9:00 PM

for information and registration please contact: QSCAN at

Phone: (718) 712-0873

Fax: (718) 712-0198

205-14 Linden Blvd, Suite 206,

St. Albans, NY 11412

E-mail: qscanorg@verizon.net www.qscan.org

Sickle Cell Anemia

The more we talk about it the more aware the world will be.

Sickle Cell awareness is the way to control this disease until there is a cure.

Advocacy

Keep a journal with the listing of all diagnosis associated with your illness, and medications; the names of your doctors, clinics and/or hospitals you attended, and the dates of all doctor's appointments, emergency room visits and hospital stays.

Share this information with at least 3 close relatives and/or friends in case of emergency who can advocate for you when you are not able to do so. (consider a Health Care Proxy)

The only dumb questions are the questions you don't ask. Ask questions about all treatment and medication that you receive.

The Internet is your friend - make yourself aware about the illness. Learn as much as you can about your health. Do the research it may help save you or someone close to you.

For those who are Internet shy - the library is still a good place to go to learn.) Local Queens Library Branches.

Join a support group. It is good to hear what others are experiencing. You can learn what rights you have and what services you are entitled to. Share the wealth of knowledge, and know that you are not alone.

Don't be afraid to talk about it. People will learn what Sickle Cell really is because people who have it will tell them.

GET INVOLVED! BE INFORMED ON THE LATEST

UPDATE ON RESEARCH AND TREATMENT FOR SICKLE CELL ANEMIA.

Dedicated Parents and Individuals Providing Services for Families, Children, Caregivers and Individuals with Sickle Cell Anemia.